What is the best treatment for neurofibroma?

There is no known treatment or cure for neurofibromatosis or schwannomatosis. Medication can be prescribed to help with pain. In some cases, growths may be removed surgically or reduced with radiation therapy.

Can neurofibromatosis be removed?

If you have neurofibromas that are causing you distress, you may elect to have them removed. They are often, but not always covered by insurance, Medicare and Medicaid with proper physician documentation.

How do I get rid of NF1?

Plastic surgery is usually needed. The surgeon cuts the neurofibromas out of the body before resealing the skin. Depending on the size and location of the neurofibromas, they may be able to be treated with laser surgery or an electric current (electrodessication) instead.

How do you shrink neurofibroma?

Confirming that Selumetinib Can Shrink Neurofibromas Selumetinib, which is taken as a pill, blocks a protein called MEK that is part of the RAS signaling pathway in cells.

Can you live a normal life with NF1?

Most people with NF1 have no or few medical problems and live normal lives, with no need for treatment. However, because every person with NF1 is at risk of complications from this disorder, it is important that they are regularly reviewed by a doctor who is familiar with the condition.

Is NF1 fatal?

In most cases, symptoms of NF1 are relatively mild, allowing patients to live normal and productive lives. However, the disorder can also be debilitating and, in some cases, life-threatening. NF1 can lead to problems within various systems, organs and functions of the body including: Skin, bone and eye abnormalities.

Is there a cure for neurofibromatosis?

There isn’t a cure for neurofibromatosis, but signs and symptoms can be managed. Generally, the sooner someone is under the care of a doctor trained in treating neurofibromatosis, the better the outcome. If your child has NF1, your doctor is likely to recommend yearly age-appropriate checkups to:

Can you get rid of neurofibromatosis?

Neurofibromatosis can be treated and managed, but there is no cure. MSK recently launched a neurofibromatosis center to improve the treatment of this disease. Neurofibromatosis is a genetic disorder that often leads to tumors throughout the nervous system, including the brain, spinal cord, and nerves.

Is neurofibromatosis completely curable?

Neurofibromatosis is not curable. Surgery is often recommended to remove the tumors. Some NF1 tumors may become cancerous, and treatment may include surgery, radiation, or Pain usually subsides when tumors are removed completely. Genetic testing is available for families with documented cases of NF1 and NF2 but such testing

Is neurofibromatosis life threatening?

Sometimes a tumor involves multiple nerves and grows to a very large size (called a plexiform neurofibroma). This is especially true on the face, arms, or legs. This type of tumor may become disfiguring, painful, or life-threatening, and it can cause weakness in the arms or legs. Most NF1 tumors are benign; however, a small number become cancerous.